Ags United States History Chapter 31 Review Answers
Data collection
Our research and data collection efforts are brought together nether the WFH Research and Data Collection Program, which includes the Almanac Global Survey, the World Haemorrhage Disorders Registry, the Gene Therapy Registry, and their accompanying education and capacity building programs. Our objective is to provide national fellow member organizations (NMOs) and hemophilia treatment centres (HTCs) with the tools to increase their capacity, the framework to collect data on people with bleeding disorders, and the education and grooming to apply that information to conduct research and abet for better care.
Annual GLOBAL SURVEY
The Annual Global Survey is a yearly cantankerous-sectional survey of WFH national fellow member organizations (NMOs) that includes country-level demographic and treatment-related information on people with hemophilia (PWH), von Willebrand affliction (VWD), rare factor deficiencies, and inherited platelet disorders.
Information Collection for the Annual Global Survey 2021 has officially begun! Nosotros are now collecting information for 2021 Annual Global Survey. For any questions or comments regarding the 2021 Annual Global Survey, delight email globalsurvey@wfh.org.
| Of import Dates | |
| Data submission deadline | May 31 |
| Data and Demographics Committee preliminary review | July |
| Final validaton of land data | July 30 |
| Publication of the Report on the Almanac Global Survey | October |
Report on the WFH Almanac Global Survey 2020
In the report on the Annual Global Survey 2020, at that place were a full of 120 data respondents who provided demographic and treatment information on PWH. This report illustrates that globally over fourth dimension, there have been over 393,000 PWBD identified and reported. Furthermore, new tables have been added to prove the number of patients being treated with FVIIIa and FEIBA, besides as products used to treat VWD. The WFH is appreciative of all the efforts our national member organizations (NMOs) fabricated in gathering this important data.
Please credit the WFH when Annual Global Survey data are used in presentations, publications, or other enquiry fabric. We encourage researchers to contact us when they use WFH Annual Global Survey information. Whatever questions or comments related to the survey can be addressed to globalsurvey@wfh.org.
- Download Annual Global Survey 2020
WORLD BLEEDING DISORDERS REGISTRY
The WBDR is the only global registry collecting standardized clinical data on people with hemophilia (PWH). The WBDR provides a web-based information entry platform to a big network of participating hemophilia treatment centres (HTCs) to collect and manage their data. WBDR data are invaluable for evidence-based advocacy, research, and improving clinical practice.
PARTICIPATE IN THE WBDR
The WBDR is a key data collection tool improving the provision of intendance for PWH around the world.
HTCs interested in participating in the WBDR demand to meet the following criteria:
- Take access to the net to connect to the web-based data entry system
- Accept an identified person who can input confidential patient data in the registry
- Be willing to enrol patients in the registry over the long-term and complete follow upwardly questionnaires at each patient visit
If your HTC is interested in participating in the WBDR, please electronic mail u.s.a. at wbdr@wfh.org. The WFH will guide y'all through the procedure of obtaining ethics approving from your local institution or ministry building of wellness.
- Download ethics submission documents
Once HTCs accept obtained ethics approval, the individual(south) who will be doing data entry must accept a WBDR data entry training before they can start enrolling patients.
The International Data Integration Plan helps to combine resources from existing hemophilia registries and maximize the utility of data that currently exist past facilitating information transfer from existing patient registries to the WBDR. The programme is bachelor to interested countries who wish to join this global initiative by sharing their national data and having their data represented in the WBDR. Contact the WFH at wbdr@wfh.org for more than information.
- More than information on International Data Integration Program
Current programme collaborations
- Czech National Haemophilia Programme Registry (CNHPR): The CNHPR collects national data from viii pediatric and eight developed hemophilia treatment centres in the Czech Commonwealth. As part of a proof-of-concept study, a de-identified minimal prepare of information from the 2018 CNHPR data were imported into the WBDR. Starting in 2019, and following the success of the start import, data on genetic testing, the Hemophilia Joint Wellness Score (HJHS), comorbidities, and hospitalizations were added to the imported dataset. Information from CNHPR go on to be annually updated in the WBDR.
- Hereditary Bleeding Disorders Registry (HBDR) of the Thai Gild of Hematology: In 2021, the HBDR of the Thai Society of Hematology (TSH) collaborated with the WBDR to integrate their 2020 and 2021 data in the global registry. As a result of the cooperative work between the HBDR of the TSH and the WBDR, the minimum and extended data sets of 300 people with hemophilia A and B take been transferred to the WBDR as part of the latest import. More detailed data of data transfer from the HBDR to the WBDR can be obtained here (in English only).
Participating in the WBDR allows PWH to play an active role in edifice this of import resources and improving the future of global hemophilia care. If yous are a PWH, or a caregiver of a PWH, and are interested in enrolling in the WBDR, delight contact your HTC and enquire virtually their participation in the WBDR.
- Patient brochure
WBDR Data
The WBDR database was adult through a collaboration between the WFH, the Karolinska Institute, and Health Solutions.
The WBDR was launched in 2018 with a minimal data set, and an extended data prepare was added to the database in March 2019. Additionally, the WBDR includes five functional scales and a quality of life scale.
All patient information stored in the WBDR is de-identified and confidential. The information policy guidelines of Health Solutions adhere to both the CE-mark (Conformité Européenne) and the U.K. IGSoC (Data Governance Statement of Compliance) standards, and are compliant with the General Data Protection Regulation (GDPR).
- WBDR information privacy and security
The WBDR 2020 Data Written report includes demographic and clinical information on more than vii,000 patients from 86 HTCs and 33 countries. Please credit the WFH when WBDR data are used in presentations, publications, or other research materials.
Previous reports:
HTC SUPPORT
The WFH offers three WBDR programs to help HTCs collect quality information and acquit inquiry studies using WBDR data.
The WBDR offers a comprehensive Data Quality Accreditation (DQA) Program. The Plan includes a robust data cleaning and validation procedure that is used to enhance the information abyss, accuracy, and consistency. The WBDR data quality team works with all HTCs, providing training and feedback on the quality of collected data.
WBDR Data Quality Levels
- WBDR data quality framework overview
The WBDR Research Support Plan (RSP) is designed to motivate and support WBDR HTCs to collect, analyze, and use their WBDR data. The goal is to encourage countries with limited data collection experience to participate in the WBDR and use their information for research and advocacy.
The WBDR HTC Funding Program (HFP) is designed to provide funds to support data collection activities at WBDR HTCs in low and lower-eye income countries. The Plan aims to help HTCs improve patient enrolment and improve the quality and completeness of entered data.
For more information on information entry in the WBDR, participating HTCs are invited to consult the documents below.
WBDR Research Support Program
Supports HTCs to analyse and employ their WBDR data
WBDR HTC Funding Program
Provides funding for data entry activities at participating HTCs
WBDR 2020 Data Written report
Almanac Report summarizing demographic and clinical information from participating countries
Thank YOU
To each person with a bleeding disorder who has kindly agreed to share their data: give thanks yous for helping improve the quality of care for people with bleeding disorders (PWBDs) around the earth.
To each of the WBDR HTCs: thank you to all of the defended staff at participating HTCs who work hard to ensure that their data is meeting WBDR information quality standards.
The WFH thanks all of our sponsors for their generous fiscal back up which allows us to continue to develop this important initiative. The WBDR is supported by funding from:
VISIONARY PARTNERS
COLLABORATING PARTNERS
GENE THERAPY REGISTRY
The Factor Therapy Registry (GTR) is a prospective, observational, and longitudinal registry designed to collect long-term data on people with hemophilia (PWH) who receive gene therapy.
Gene therapy is a new and evolving therapeutic modality for hemophilia. Clinical trials have established the efficacy of factor therapy in decreasing haemorrhage and use of hemostatic treatment for at least v to 8 years mail service-infusion. However, many unresolved questions on the long-term safety, variability and immovability of efficacy remain at the completion of initial clinical trial programs. Lifelong follow‐up of patients is crucial to monitor long-term rubber and efficacy of gene therapy.
The primary objective of the GTR is to determine the long-term prophylactic of factor 8 and cistron IX gene therapies for PWH. Secondary objectives are to determine the long-term efficacy and the durability of factor Eight and factor IX gene therapies in PWH, and to assess long-term quality of life and burden of illness post gene-therapy infusion.
Data will be captured in the registry one of two ways:
- Directly via participating hemophilia treatment centres (HTCs)
- All HTCs that will be administering gene therapy for PWH will be invited to participate. HTCs that volition be providing follow up visits for PWH who receive gene therapy will either be invited to participate, or the patient data collected at the follow up site will exist sent to the HTC administering gene therapy for inclusion in the registry.
- Through data transfer/linking from existing national hemophilia registries who meet specific criteria and can ensure the following:
- Collection of the same/similar data fields equally the WFH GTR core information set
- Harmonization and standardization of terminology, particularly for adverse events
- Patient consent for secondary uses of their data exterior of the existing registry
- Strict data quality management practices and loftier-quality data
- Avoidance of duplication of PWH
If participation in the GTR is of interest to your HTC or to your country, please contact usa at gtr@wfh.org.
The GTR protocol synopsis is available here.
Data Quality Program
The WFH GTR will include a comprehensive data quality program, which volition be applied to all WFH GTR data entered in the gene therapy registry. All data volition exist evaluated on the following data quality dimensions:
- Completeness
- Accuracy
- Timeliness
- Source document validation
THE GTR IS SUPPORTED BY FUNDING FROM:
FOUNDING VISIONARY PARTNERS
COLLABORATING PARTNERS
IEQAS improves and standardizes laboratory diagnosis by auditing the effectiveness of a laboratory'due south internal quality assurance systems to determine competence levels.
Stay informed
Keep up to date on the latest developments in the bleeding disorders community, from medical advances to important events.
- Subscribe at present
Disclaimer
The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular handling for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you lot contact your doctor or local treatment centre. Before administering whatever products, the WFH urges patients to check dosages with a physician or hemophilia center staff, and to consult the pharmaceutical visitor's printed instructions.
While every effort has been made to ensure the accuracy of the data on this site, the WFH does not guarantee the data is accurate, and is non responsible in any way whatsoever for amercement arising out of the utilize of this website or any of the information contained herein.
Letters posted to WFH give-and-take forums, Facebook, Twitter, and other social media platforms exercise not represent the opinions of the Earth Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical communication, even when the writer has medical qualifications or is considered an authority. Data posted to a discussion group should not exist used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have whatsoever individual questions or concerns.
References and links to other websites or references to other organizations, products, services, or publications practice not constitute endorsement or approving by the WFH. The WFH is non responsible and assumes no liability for the content of whatsoever linked websites.
Website privacy policy
The WFH does not collect personally identifying information well-nigh you when y'all visit our site, unless yous choose to provide such information to us. Providing such data is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our website.
Utilise of links
Throughout our website, nosotros provide links to other servers which may contain information of interest to our readers. We have no responsibility for, and practise no command over, the organizations, views, or accuracy of the information independent on other servers. When linking to the WFH, we request that you ensure that there are no associated connections for commercial purposes. Any official apply of the name WFH or the apply of its logo needs to be canonical by the WFH. If you have a link you'd like u.s. to consider adding to our website, please send an email to web@wfh.org with the subject "Link request."
Use of text and images
All information, photographs, graphics, and other material on this website are protected by copyright. While users of this website may use the content for personal, non-commercial utilise, none of the content of this website tin can be modified, translated, transferred or sold, copied, reproduced, published, or distributed, in whole or in part, without the prior written consent of the WFH. To view a copy of the WFH's permissions guidelines, click here.
The WFH encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would like to publish information that you find on our website, delight send your asking to publications@wfh.org.
Accessibility
If you take suggestions on how to make the site more accessible, please contact us at web@wfh.org.
Opt-Out or Change Your Contact Data
Our website provides users the opportunity to opt-out of receiving communications from us through a special online form or via the communication they have received. Yous may, at all times, cull to receive which communications inside the organization you can receive or none at all. Yous may also update your contact information previously provided to us via another online form.
Questions about our policies
If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact u.s. at web@wfh.org.
U.s.a. - Chapel Hill, North Carolina
Year of IHTC designation: 1972
Academy of North Carolina Hemophilia & Thrombosis Center
Areas of Specialty
- Developed and pediatric hematology
- Laboratory diagnosis
- Nursing
- Physiotherapy/ Occupational therapy
- Psychology/ Social services
The states - Columbus, Ohio
Year of IHTC designation: 2018
Nationwide Children's Hospital
Areas of Specialty
- Pediatric hematology services
- Physiotherapy/occupational therapy
- Dental care
- Orthopaedic care (no surgery)
- Laboratory diagnosis
- Nursing
- Psychology/social services
United States - Houston, Texas
Year of IHTC designation: 2000
Gulf States Hemophilia and Thrombophilia Center
University of Texas Wellness Science Center at Houston
Areas of Specialty
- Adult and pediatric hematology
- Laboratory diagnosis and hemostasis
- Nursing
- Blood banking
- Physiotherapy/ Occupational therapy
- Psychology/Social services
United States - Los Angeles, California
Year of IHTC designation: 1970
Orthopaedic Hemophilia Handling Center
Areas of Specialty
- Developed hematology
- Laboratory diagnosis and hemostasis
- Nursing
- Orthopedic care and surgery
- Physical therapy
- Psychology/Social services
United States - New York, New York
Year of IHTC designation: 1993
Mount Sinai School of Medicine
Mount Sinai Medical Eye
Areas of Specialty
- Adult and pediatric hematology
- Laboratory diagnosis and hemostasis
- Nursing
- Orthopedic care and surgery
- Molecular genetics
- Social services
United States - Rochester, Minnesota
Year of IHTC designation: 1974
Mayo (Rochester) Comprehensive Hemophilia Heart, and International Hemophilia Grooming Center (WFH)
Mayo Clinic/Foundation and Mayo Medical School
Areas of Specialty
- Adult and pediatric hematology
- Laboratory diagnosis and hemostasis
- Nursing
- Orthopedic care and surgery
- Blood banking
- Molecular genetics
- Psychology/ Social services
United States - San Diego, California
Year of IHTC designation: 2018
Hemophilia & Thrombosis Treatment Center
University of California San Diego
Areas of Specialty
- Developed hematology
- Physiotherapy/occupational therapy
- Dental care
- Orthopaedic care (no surgery)
- Laboratory diagnosis
- Nursing
- Psychology/social services
United Kingdom - London
Yr of IHTC designation: 1970
Katharine Dormandy Haemophilia Centre and Thrombosis Unit
Regal Free Hospital
Areas of Specialty
- Adult hematology
- Laboratory diagnosis and hemostasis
- Nursing
- Orthopedic care and surgery
- Physiotherapy/Occupational therapy
- Molecular genetics
- Psychology/Social services
United kingdom of great britain and northern ireland - Manchester
Year of IHTC designation: 2008
Manchester Haemophilia Comprehensive Care Eye (Children's and Adult's)
Manchester Purple Hospital and Manchester Children'due south Hospital
Areas of Specialty
- Adult and pediatric hematology
- Laboratory diagnosis and hemostasis
- Orthopedic intendance and surgery
- Nursing
- Molecular genetics
- National Hemophilia database
U.k. - Oxford
Year of IHTC designation: 1972
Oxford Haemophilia Middle and Thrombosis Centre
Churchill Hospital
Areas of Specialty
- Adult and pediatric hematology
- Laboratory diagnosis and hemostasis
- Orthopedic intendance and surgery
- Nursing
- Molecular genetics
- Physiotherapy/Occupational therapy
United kingdom - Sheffield
Year of IHTC designation: 1992
Sheffield Haemophilia and Thrombosis Middle
Imperial Hallamshire Infirmary
Areas of Specialty
- Developed hematology
- Laboratory diagnosis and hemostasis
- Molecular genetics
Disclaimer
The data on the WFH United states website is provided for general information purposes only. The WFH The states does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH USA recommends that you contact your doc or local treatment center. Before administering any products, the WFH United states of america urges patients to bank check dosages with a doc or hemophilia centre staff, and to consult the pharmaceutical visitor'due south printed instructions.
While every effort has been made to ensure the accuracy of the data on this site, the WFH USA does not guarantee the data is accurate, and is not responsible in whatever way whatsoever for amercement arising out of the use of this website or whatsoever of the information contained herein.
Messages posted to WFH USA word forums, Facebook, Twitter, and other social media platforms practice not correspond the opinions of the World Federation of Hemophilia, its staff, or Lath of Directors. The author of a message is solely responsibleness for its content. Information posted on WFH USA social networks and platforms should never be a substitute for individualized professional person medical communication, fifty-fifty when the author has medical qualifications or is considered an say-so. Information posted to a discussion group should not be used to diagnose or care for a specific wellness trouble without consulting a qualified healthcare professional. The WFH U.s. recommends that you lot contact your physician or local treatment center if you lot have any individual questions or concerns.
References and links to other websites or references to other organizations, products, services, or publications exercise not plant endorsement or approval past the WFH The states. The WFH USA is not responsible and assumes no liability for the content of any linked websites.
Website privacy policy
The WFH USA does non collect personally identifying data about you when you visit our site, unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we volition handle data we learn about you from your visit to our website.
Use of links
Throughout our website, we provide links to other servers which may contain information of interest to our readers. Nosotros take no responsibleness for, and practice no command over, the organizations, views, or accurateness of the information contained on other servers. When linking to the WFH U.s., nosotros request that yous ensure that at that place are no associated connections for commercial purposes. Any official use of the name WFH Usa or the utilize of its logo needs to be approved by the WFH USA. If yous have a link you'd like us to consider adding to our website, please send an electronic mail to info@wfhusa.org with the subject "Link asking."
Utilize of text and images
All data, photographs, graphics, and other fabric on this website are protected past copyright. While users of this website may use the content for personal, non-commercial use, none of the content of this website can be modified, translated, transferred or sold, copied, reproduced, published, or distributed, in whole or in role, without the prior written consent of the WFH The states. To view a copy of the WFH USA's permissions guidelines, click here.
The WFH U.s. encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would similar to publish data that you notice on our website, delight send your request to publications@wfh.org.
Accessibility
If you have suggestions on how to brand the site more accessible, delight contact us at info@wfhusa.org.
Opt-Out or Change Your Contact Information
Our website provides users the opportunity to opt-out of receiving communications from the states through a special online form or via the advice they have received. Yous may, at all times, cull to receive which communications within the arrangement you can receive or none at all. Y'all may also update your contact data previously provided to us via another online form.
Questions near our policies
If you have any questions nigh this privacy statement, the practices of this site, or your dealings with this website, you can contact u.s. at info@wfhusa.org.
Light it Upwardly Red landmarks
Canada
| Burlington, Ontario | Burlington Brant Street Pier |
| Calgary, Alberta | Calgary Belfry (April 16th) |
| Calgary, Alberta | TELUS Spark Building |
| Charlottetown, P.East.I. | Charlottetown City Hall |
| Guelph, Ontario | Guelph Market And Square Fountain |
| Kingston, Ontario | Kingston City Hall |
| Lethbridge, Alberta | Lethbridge City Hall |
| London, Ontario | London City Hall |
| The fountain at the Forks | |
| JA Taylor Building at Wellington and Dundas | |
| Canada Life edifice | |
| RBC Place London | |
| Mississauga, Ontario | Civic Middle Clock Tower |
| Newmarket, Ontario | Riverwalk Commons and the Fred A. Lundy Bridge |
| Niagara Falls, Ontario | Niagara Falls (10PM EST for fifteen minutes) "Watch it live!" |
| Crimson Deer, Alberta | Red Deer City Hall |
| Saskatoon, SK | Saskatel Centre |
| St. Johns City, Newfoundland | St. Johns Urban center hall, NFD |
| Toronto, Ontario | CN Tower "Watch it live!" |
| Vancouver, BC | Queen Elizabeth Theatre Tower |
| Sails of Light Canada Place | |
| BC Identify | |
| Vancouver City Hall | |
| Science World |
United States
| Niagara Falls, New York | Niagara Falls (10PM EST for xv minutes) "Watch it live!" |
| Boston, Massachusetts | Zakim Bridge in Boston |
| Longfellow Bridge in Boston | |
| Davenport, Iowa | DavenPort Skybridge, Iowa |
| Gilbert, Arizona | Gilbert Belfry, Arizona |
| Houston, Texas | Transwestern hq |
| Milwaukee, Wisconsin | Pfister Hotel |
| Minneapolis, Minnesota | Lowry Avenue Span |
| I-35W Saint Anthony Falls Span | |
| New York City, New York | Helmsley Building 230 Park Avenue building |
| Oklahoma Urban center, Oklahoma | Skydance bridge |
| Poughkeepsie, New York | Mid-Hudson Span |
| Scottsdale, Arizona | Talking Stick Resort |
| Weymouth, Massachusetts | Fore River Bridge in Quincy/Weymouth |
| Worcester, Massachusetts | Burns Bridge in Worcester |
Argentina
| Buenos Aires, Argentine republic | Planetario |
| La Torre Awe-inspiring | |
| Monumento Plaza Congreso | |
| Palacio Lezama |
Australia
| Australian Capital Territory | Shine Dome |
| Imperial Australian Mint | |
| The Carillion | |
| New South Wales | Newcastle City Hall Clock Tower |
| Northern Territory | Darwin Convention Center |
| Queensland | Breakfast Creek Bridge, Newstead, Brisbane City Council |
| Brisbane City Boondocks Hall | |
| CBD Tree Lights, Maronoa | |
| Cardinal Park Boardwalk, Townsville | |
| Courtroom House Gallery, Cairns Regional Council | |
| George Roberts Bridge, Townsville | |
| Heritage Façade Quango building, Rockhampton | |
| Ipswich Borough Eye, Ipswich City Council | |
| Kurilpa Span, QGAO | |
| Little Fletcher Span, Townsville | |
| Erstwhile Magistrates Court Business firm, Townsville | |
| Parliament House, Brisbane | |
| Reddacliff Identify sculptures, Brisbane City Council | |
| Sandgate Boondocks Hall, Brisbane Urban center Council | |
| Stanthorpe Administration Building, Southern Downs Regional Council | |
| Story Bridge, Brisbane City Council | |
| Town Hall Warwick Clock Confront, Southern Downs Regional Council | |
| Townsville Sign | |
| Transurban Gateway Bridge QLD | |
| Treasury Casino, Brisbane | |
| Victoria Span, Brisbane City Council | |
| Victoria Bridge, Toowoomba | |
| Victoria Span, Townsville | |
| Warwick Town Hall roof lights, Southern Downs Regional Quango | |
| Water Towers, Logan | |
| Wharton Reef Lighthouse, Townsville | |
| Wickham Terrace Car Park architectural wall, Brisbane City Council | |
| Due south Australia | The New Riverbank Lighting Characteristic |
| Tasmania | Launceston Town Hall |
| Victoria | Ballarat Town Hall Clock and Fountain |
| Geelong intersection Moorabool & Malop St Geelong | |
| Bolte Bridge Melbourne | |
| Drum Theatre Dandenong | |
| Western Australia | Mandurah bridge |
| Mount Street Bridge | |
| Northward Bridge Tunnel | |
| Optus Stadium | |
| Heaven Ribbon | |
| The Bell Tower, Perth |
England
| Leicester | Leicester Royal Infirmary (Victoria Building) |
India
| Bombay | Chhatrapati Shivaji Maharaj International Drome (Terminal 2) |
Panama
| Panama | Conjunto Monumental Histórico de Panamá Viejo |
| Edificio de la Administración del Canal de Panamá | |
| Tribunal Electoral | |
| Infirmary del Niño | |
| Caja de Ahorros | |
| Capital letter Bank | |
| Compañía de Seguros Assa | |
| IPHE |
Taiwan
| Taipei City | Farglory Financial Center |
If y'all're aware of a landmark that is lighting up ruddy for World Hemophilia Twenty-four hour period 2022 that is not on this list, delight forward the official confirmation from the landmark to marcomm@wfh.org to accept information technology added to the list.
Henri Horoszowski Award
| 2021 | Baolai Hua Yangzhou College, Xuzhou Medical Academy | The effects of intra-articular injection of TNF-alpha Antagonists in treatment of haemophilic synovitis |
| 2019 | Maarten Eerdekens Belgium | Association between multi-segment foot kinetics and blood induced joint damage in adult patients with hemophilic ankle arthropathy |
| 2017 | Fabio Souza Brazil | Decrease in joint inflammation, swelling and pain after a pond protocol in animal model of experimental-induced hemarthrosis |
| 2015 | SM Javd Mortazavi Iran | Bilateral full knee arthroplasty in patients with hemophilia: A prophylactic and cost-effective process |
| 2013 | Lize F.D. van Vulpen United States | A fusion poly peptide of IL4 and IL10, is equally constructive in protecting cartilage from blood-induced impairment compared to the private components |
| 2012 | Horacio Caviglia Argentina | Pseudotumor Surgery in Haemophilia A patients: Comparitive results betwixt inhibitor and non-inhibitor patients |
| 2011 | Nick Goddard Uk and Monique van Meegeren The netherlands | Early onset administration of IL-4 and IL-10 prevents claret-induced cartilage damage in vitro |
| 2010 | Lydia Abad-Franch Espana | Influence of an Aquatic Training Protocol on the Reduced Hazard of Cardiovascular Morbidity and Bloodshed in a Hemophiliac |
| 2009 | Sebastien Lobet Kingdom of belgium | Impact of Hemophilia Talocrural joint Arthropathy on Gait Disability: Assay of Energetic and Mechanical Variables |
| 2008 | Jose Alberto Tlacuilo-Parra United mexican states | Bone Turnover Markers and Bone Mineral Density in Children with Hemophilia |
| 2007 | Natalie Jansen Holland | Protective Abilities of Interleukin-10 in Blood-induced Cartilage Impairment |
| 2006 | Axel Seuser and Due east. Kusch Federal republic of germany | Multi-Center Report of Orthopedic Event of the Lower Extremities in 249 Children with Hemophilia |
| 2005 | Frank van Genderen, Nico van Meeteren, Lily Heijnen, Piet de Kleijn, Marijke van den Berg, Paul Helders The netherlands | The Hemophilia Activities List: Final development and validation of a hemophilic-specific self-assessment questionnaire on functional abilities |
| 2004 | Goris Roosendaal, Zalima N Jahangier, Kim MG Jacobs, Johannes WJ Bijlsma, Floris PJG Lafeber The netherlands | Radiosynoviorthesis using YTTRIUM-xc results in adverse direct effects on cartilage: a human in vitro study |
| 2003 | Axel Seuser, Thomas Wallny, Günter Schumpe, Elmar Trunz, Hans-Hermann Brackman Germany | How to advise immature haemophiliacs to observe the right sport? A new and safe algorithm |
| 2002 | James Luck, Jr. and Mauricio Silva United States | Long-Term Review of Total Human knee Arthroplasty |
| 2001 | Federico Fernández-Palazzi Venezuela | Oxytetracycline Chlorohydrate: A new material for chemical synovial orthoses |
| 2000 | Horacio Caviglia Argentine republic | Pseudotumours |
| 1999 | William J. Ribbans and J.L. Hicks Uk | Communication and Co-operation for the New Millennium – The Future of the Musculoskeletal Commission in the 21st Century |
| 1998 | Adolfo Llinas, Mauricio Silva, Monica Duarte, Gonzalo Ucros, Graciela Perini, Angela Maria Cerquera, Andres Forero Colombia | Chromic phosphate synoviorthesis without historic period restriction should be the first handling option for chronic active hemophilic synovitis |
Quality of life scale
The outcomes of interest collected in the WBDR include demographic characteristics, clinical and handling-related outcomes, burden of affliction outcomes, and quality of life. The quality of life scale, EQ-5D-5L, is office of the WBDR extended data prepare. It is available in more than 130 languages and in different modes of administration.
If you would like a different language, please email us at wbdr@wfh.org.
Other bachelor languages include
Amharic
Arabic (Algeria, Morocco, UAE)
English (Ghana, India, Jamaica, Republic of kenya, Nigeria, and the Philippines)
French (Algeria, Belgium, and Morocco)
Hungarian
Malayalam
Nepali
Punjabi
Russian (Ukraine)
Serbian
Spanish (Argentine republic, Panama, Kingdom of spain, and the The statesA)
Swahili
Tagalog
Thai
Twi
Ukrainian
Urdu
Vietnamese
Source: https://wfh.org/data-collection/
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